Caring for the M. E. Patient

Essential information for anyone who knows, loves or provides care for someone with M. E., sourced from the world’s leading M. E. experts

Jodi Bassett

За особеностите на екземпляра

Състояние:: Добро
Забележка:: Чисто книжно тяло, позахабен външен вид.
Език:: Английски
Наличност:: 1 бр.

За изданието

Издателство:: hfme. org
Град на издаване:: London
Година:: 2011 г.
Език:: Английски
Страници:: 161
Корици:: Меки
Категория:: Медицина и биология
Тегло (гр.):: 502
Ширина (мм):: 210
Височина (мм):: 295
Дебелина (мм):: 10
ISBN:: 9781445296395

Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M.E. expert Dr Byron Hyde. M.E.is a distinct neurological disease and is not at all the same thing as 'CFS.' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment. * Contents CHAPTER ONE: Introduction 9 A one-page summary of the facts of M.E. M.E. - The shocking disease 12 What is M.E.?: Summary CHAPTER TWO: Information for friends, family and partners 23 So you know someone with M.E.? 25 So you know someone with M.E.? Part 2 33 The misdiagnosis letter for M.E. patients: Form 36 CHAPTER THREE: Information for carers and hospital staff 39 Hospital or carer notes for M.E. patients 41 Hospital or carer notes for M.E. patients: M.E. patient care form 47 Why patients with severe M.E. are housebound and bedbound 54 Assisting the M.E. patient in managing relapses and adrenaline surges 66 Assisting the M.E. patient in managing relapses and adrenaline surges: Summary 75 Assisting the M.E. patient in having blood taken for testing 77 Assisting the M.E. patient in managing bathing and hair-care tasks 79 Assisting the M.E. patient in managing toileting tasks 85 The HFME 3 part ability scale for M.E. patients 87 The HFME ability scale for M.E. patients: Summary 96 The HFME ability and severity checklist 98 CHAPTER FOUR: More information on M.E. 101 M.E. vs. M.S. - Similarities and differences: Condensed modified version 103 What is M.E.? A historical, medical and political oven ie» 115 CHAPTER FIVE: Information about HFME and final comments 133 The aims of HFME and the reasons for the aims of HFME 136 Why hummingbirds as a metaphor for M.E.? 140 Personal acknowledgments & Acknowledgments 142 The HFME reference list 145 Additional HFME resources available online 156